Showing posts with label LIS. Show all posts
Showing posts with label LIS. Show all posts

Friday, 26 June 2020

The Purple Cave - Extract 'Flight from Fernilee'

Slowly and steadily, they continued along an underground river, the tunnel now so dark and narrow Odi began to hyperventilate again.
"Just what I need," he whined, "another bout of close-to-phobia!"
"Claustrophobia," Alice corrected him. "Seems pretty close to me!" replied Odi, for once unable to think of anything clever to say. To his great relief, they soon reached another, bigger cavern. So big, in fact, it resembled a magnificent palace, adorned with shafts of sunlight from above. As the Judith Mary approached its mooring, coming to rest on the banks of a crystal lagoon, all aboard gaped in astonishment.  Not only was the cavern wonderfully bright and airy, it was like no other they had ever seen before.
"It's purple!" Joe cried. "All purple and shiny!"
"We must be in the Blue John mines." Laurel suggested.
"But it's purple!" insisted Joe.
"Blue John IS purple, Silly," Alice tutted despairingly. "Don't you boys know anything?"
"Oh, so that's why it's called blue!" said Odi with a good dollop of sarcasm. "The stuff's purple, so naturally, you call it Blue. That's cool, and not at all confusing!" – Flight from Fernilee*

Samples of Blue John at Castleton Heritage Centre

No wonder Odi was confused. Despite its name, Blue John – a semi-precious stone from Castleton in Derbyshire – is generously threaded by bands of purple which tend to predominate.
However, there is also a yellow banded variety of this rare fluorite and one theory is that, during the reign of Louis XVI, it was exported for use by French ormolu workers who dubbed it ‘bleu-jeune’ (or ‘blue- yellow’ to Derbyshire folk like me!) Another source for the Blue John name may be miners drafted in from Cornwall. They referred to the stone as ‘bleujenn’, a Cornish term for a flower or blossom.
According to “Gem of the Peak” by 19th century writer William Adam, Blue John was discovered by the Romans but, as no evidence has ever been found for such a claim, we might put it down to historical embroidery! What we DO know is that Blue John was a popular material for fireplace panels during the mid-18th century. A Blue John plaque dated around 1760 can be seen in the Friary Hotel in Derby, while Robert Adam, the famous architect and interior designer used it to decorate nearby Kedlestone Hall.
At their 18th century peak, the Blue John Cavern and Treak Cliff Cavern in Castleton (the only sites in the UK where Blue John is mined*) produced 20 tons per annum. By the late 19th century, 3 tons per annum was mined, a figure further reduced to a mere half a ton today. Castleton is highly protective over its unique resource which is why all items made from Blue John, such as boxes, pots, vases and distinctive jewellery, are created by local craftsmen.
*The only other place where Blue John can be found is the Deqing Fluorite mine in the Zhejiang Province of China.
*Flight from Fernilee is available from Amazon


Friday, 2 March 2018

Meet Pete, before and after Locked-in Syndrome

Peter Coghlan

Meet Pete - pre-teen Pete. Cute, ey? Yet this handsome, happy-go-lucky lad was already verging on hooliganism.

You know the type - the type mums tell their sons not to play with and dads tell their daughters not to date.....or at least, in Pete's case, they would have done had it not been for 'AvaChat' Coghlan's engaging charm and genuinely good heart.

This angelic boy was soon to become a typical teen, wilder than most with a taste for 'magic mushrooms' and a habit of setting things on fire. (If you read the first chapter of his book you'll find out what I mean!)*
Pete served in Northern Ireland after joining the army

It's fair to say Pete's teens and twenties were a blast (sometimes literally!) Despite serving in Northern Ireland during the dying days of the troubles, and having a brush with Hodgkin's Lymphoma aged 21, which put an end to his army career, he maintained his cheerful outlook, met the girl he was to marry and emigrated to Perth, Western Australia for a new life in the sun.

For several years, Pete worked hard, played hard, had loads of laughs, gained Australian citizenship and managed to satisfy his arsonist tendencies with plenty of barbies.

Then, out of the blue, tragedy struck with a blow to the back of his head while laying drains on a build. Next news, he was being rushed to A&E with a massive brain stem stroke which left him totally paralysed - except for some movement in his eyes. At just 32, he faced a grim future.


Totally paralysed after his locked-in stroke, Pete needed sandbags to hold down his arms

Locked-in syndrome, they called it (LIS) - a rare and little understood condition, brought about by brain injury, illness or severe stroke. Not even top neurologists could tell whether he'd recover from this frightening 'disease of the walled living' as LIS is sometimes known.

But Peter fought back. Having survived bullying, mobs, cancer and years of hard work, he was determined, not only to survive, but to regain everything LIS had robbed from him.

Six months and one day after being admitted to hospital, he walked out of Shenton Rehabilitation Unit, albeit shakily, and began his long, exhausting journey back to life.

After 6 months, Peter could walk but only shakily

Since then, he has taken part in marathons, regained his voice to become an inspirational speaker, learned to play the guitar, qualified as a Health Assistant supporting disabilities in the community, begun training as a bodybuilder and written a book about his experience with the aim of bringing hope to thousands of people struck down, locked-in and often left to battle on their own, with his resounding cry: "Keep trying and never ever give up!"

Triumphant after completing Pdrth's City to Surf marathon


*"In the Blink of an Eye - Reborn" by Peter Coghlan is available from Amazon  in both printed and  digital formats 

UK: https://www.amazon.co.uk/Blink-Eye-Reborn-Peter-Coghlan/dp/1727145593/ref=sr_1_1?ie=UTF8&qid=1537253272&sr=8-1&keywords=in+the+blink+of+an+eye+reborn+peter+coghlan

US: https://www.amazon.com/Blink-Eye-Reborn-Peter-Coghlan/dp/1727145593/ref=sr_1_2?ie=UTF8&qid=1536573367&sr=8-2&keywords=in+the+blink+of+an+eye+reborn+peter+coghlan

US: https://www.smashwords.com/books/view/314601





















Saturday, 11 July 2015

Locked-in stroke survivor helps others have hope

       In 2012, I received a phone call from my nephew Dan: 'Please could I help his great friend Peter to publish a book on his experiences with - and recovery from - Locked-in syndrome?'

      Following a massive brain stem stroke which almost killed him, Peter Coghlan awoke from a coma totally paralysed, unable to move anything except for his eyes.  He was entombed by Locked-in syndrome (LIS), an extremely rare and little understood condition which may affect severe stroke or brain injury sufferers.

       Of course I would help. Who could refuse to share in such a remarkable story….that of a young man breaking free from his own body! Over the next few months of emailing, skyping and editing his writings, I came to know Peter very well – well enough to realise he was a very special person.

       But I didn’t appreciate just HOW special he was until I read the following email in response to a recent heartfelt plea from Peter – that his story be remembered for the benefit of other stroke and locked-in survivors. His refusal to accept that he would never walk or talk again resulted in the fastest known recovery from locked-in syndrome previously recorded, giving hope and inspiration to other survivors who, like Peter, refuse to lie down!

Pete (left) with his fitness instructor Warren

To All General and Neurological Practitioners, Hospitals, Stroke Specialists, Therapists and Stroke Support Groups worldwide:

“Peter Coghlan has done so much to inspire other stroke survivors.  He is a role model for "life after stroke" and must be the one in a million to live to tell the tale.

I have read Jean-Dominique Bauby's book: 'The Diving Bell and the Butterfly' (but how many have?) and he never recovered his full mobility or lived long enough to jump hurdles and return to the workforce.* 

Peter's book: 'In the Blink of an Eye - Reborn' is a true account of the devastation to the lives of all stroke survivors.  Our group has been touched by his story and his dedication to assist others on a voluntary basis at hospitals in Perth WA.

Invite him over to speak at your conferences.  Use living images so that others can marvel in the technology that saved his life.”

Sally Allen (Coordinator/Secretary/Founder Member)
The Northern Suburbs Stroke Support Group inc.



Pete today

*Peter Coghlan is now a qualified health care worker, cycles, competes in marathons, plays the guitar, and has written a book, which he hopes will inspire other locked-in survivors. Not bad for a man few thought would ever walk, talk or do anything other than blink his eyes again!







https://www.amazon.com/Blink-Eye-Reborn-Peter-Coghlan/dp/1727145593/ref=sr_1_1?ie=UTF8&qid=1544017181&sr=8-1&keywords=in+the+blink+of+an+eye+reborn+peter+coghlan







Tuesday, 24 April 2012

Locked-in Syndrome - One man's record recovery


       "It's hard to explain what it's like being in a coma. A coma is a weird place, like a dream but all messed up. I remember being sat in a chair in a big open room with a needle stuck in my arm and being starved of oxygen, feeling very weak and hearing my heart beating very loudly. People were walking past and ignoring me; I felt like I was slipping away and I was so afraid." 


Pete was totally paralysed after waking from coma

       Fear did not come naturally to Peter Coghlan, brown belt karate, jiu-jitsu and kickboxing enthusiast. At just 33 years old, this former soldier had already faced dangers few of us could imagine; mob violence in Northern Ireland, two attempted bombings and a serious battle with Hodgkin's Lymphoma.
      Yet, having just moved to Perth, Australia with Jade, his fiancee, there was no time to dwell on the past as Peter enjoyed a pre-dinner drink on the patio with friends and family. The future on that hot, sunny evening seemed as bright as the weather until, suddenly, he felt tired and decided to lie down for a nap.
      "About four hours later, I awoke feeling confused and agitated. I walked out to my patio where my friends and family were sitting around my bar. I remember feeling very strange and said, 'I feel like I have had a stroke.' The others noticed I was slurring my words and they asked me to walk in a straight line up and down the patio. Shortly after this I apparently began vomiting in the garden, but I don’t remember this, nor do I remember taking a shower to make me feel better." 
      The journey to hospital was just a blur. The next thing Peter knew was being totally helpless, unable to move and very, very scared. After suffering a massive brain stem stroke, Peter was now imprisoned by his own body; totally paralysed by Locked-in Syndrome (LIS). 
Pete on the mend at Shenton Rehabilitation Unit

      Sometimes known as "disease of the walled living" this neurological condition is difficult to diagnose as, owing to their lack of response to stimuli, patients are often assumed to be comatose or in a vegetative state. Main causes are stroke of the basilar artery, brain haemorrhage or injury, damage to the pons area of the brain, and diseases that destroy the myelin sheath which protects nerve cells. Effects are devastating. Unable to move, sufferers retain their cognitive and intellectual powers but can only communicate through vertical eye movements - the only voluntary muscles still functioning. Even this ability may go undetected for some time, usually being spotted by regular carers or close family and friends.
      LIS is mercifully rare. Unfortunately, there is no cure or treatment to date, the only help available being assistive technology to improve communication. Despite this - just six months and one day after his stroke - Peter Coghlan left Royal Perth Hospital in Shenton Park, Perth and walked back into the sunshine. 

Pete today, back on his feet and living life to the full

     Peter has now recovered from his ordeal and, in addition to his career as a health worker, he also gives talks to medical and allied health care students, giving them insight into LIS. He has also written a book based on his experiences which he hopes will encourage other survivors.



UK:
https://www.amazon.co.uk/Blink-Eye-Reborn-Peter-Coghlan/dp/1727145593

US:

https://www.amazon.com/Blink-Eye-Reborn-Peter-Coghlan/dp/1727145593

US: 

https://www.smashwords.com/books/view/314601